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?Anonymous Post? Genetic Testing

by JAJ (follow)
Anonymous (72)     
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?Anonymous Post? Genetic Testing


Our daughter was born 9 weeks ago and we have recently found out through chromosome and genetic testing that she has a syndrome. We have been informed it is very rare and no name for it. A referral has been sent to the wch genetics team who we are seeing in a few weeks time.
I am wondering if anyone has seen a genetic doctor there and if they can give some insight to what the appointment will be like? If it will be an ongoing thing seeing the genetics team or if it's a once off? Or any other information in regards to the appointments.
I understand everyone's experience will be different but I just have so many questions and want to have some idea of what to expect. Thanks

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You and your family are invited to a Photography for Parents Workshop on Saturday 11th May 2019 at Rymill Park.
Do you want to learn how to knit? Or have recently started and would like to meet some new friends to share your creativity with, all while having a good chat? Adelaide Knitting Club has beginner classes running now.
The Adelaide Crochet Club meets on a regular basis to learn crochet, meet other local mums, and to have a good chat. Whether you're a complete beginner or a seasoned pro, everyone is welcome to come along.
Do you need an updated family photo?
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